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Our Healthcare System Abandons Adult Sickle Cell Patients
When Janoi Burgess was a child, he thought doctor appointments were fun.
“I used to love it because they had a section where you could play games,” said Burgess, who was born with sickle cell anemia, an inherited blood disorder. “They were really nice and friendly.”
But when he turned 21, the South Florida resident could no longer go to his pediatric specialist. Instead, he “bounced around” to various primary-care doctors for adults, none of whom seemed well versed in the details of his condition. When he had a painful sickle cell crisis two years later, his only choice was to go to a hospital emergency department, where, he says, he waited three hours for pain medication.
videos & visualsInvesting in a Cure for Sickle Cell Disease: Lakshmanan Krishnamurti, MDhttps://www.youtube.com/watch?v=Fr5KvM4U...
education & researchOutcomes of an Emergency Department Observation Unit–Based Pathway for the Treatment of Uncomplicated Vaso-Occlusi...Study objective: This was a prospective...
education & researchComparing Sickle Cell Disease Acute Pain Management in the Pediatric and Adult Emergency DepartmentBackground: Vasoocclusive pain leading ...
people & placesChristiana Care Sickle Cell ProgramChristiana Care is one of the country’...
news & eventsPCORI Board Approves $18 Million for Research on Sickle Cell DiseaseThe Patient-Centered Outcomes Research I...
videos & visualsStepping up: Kevin’s Decisionhttps://www.youtube.com/watch?v=THZN849V...
videos & visualsVaso occlusive Crisis Pain Assessment & Managementhttps://www.youtube.com/watch?time_conti...
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