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2020 RARE on the Road – Virtual Event

Since 2017, Global Genes and the EveryLife Foundation have partnered to host Rare on the Road events around the country, developing the next generation of advocacy leaders. This year, due to the coronavirus crisis, we are hosting Rare on the Road virtually!

Part I: Interactive Webinar – Tuesday, June 23rd, 11:00 a.m. ET – 1:30 p.m. ET

Participate in interactive tutorials on how to tell their rare story and how to get involved in advocacy. This event is open to all rare disease community members and will feature special guest speakers, including a rare disease patient and a policy expert.

Part II: Rare Chats – Wednesday, June 24th, 11:00 a.m. ET – 12:00 p.m. ET

Meet local rare disease community members with this unique video chat experience.


This event has ended.



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