Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Jennifer Concepcion
Community Advocate Bronx, New York, United States
From the moment she found out her daughter would have sickle cell disease, she began educating herself and others about the disease. When her daughter had her first sickle cell pain episode, she shared it with the world, not knowing the type of impact it would create. Jennifer was able to expose the ugly realities of sickle cell disease, while capturing the hearts of thousands of viewers. Jennifer has accomplished so much in very little time. In September 2014, Jennifer took sickle cell advocacy and awareness to a whole new level when she focused her efforts on the Sickle Cell Treatment Act petition.
Jennifer is also active within the sickle cell community and has introduced it into the Latin community. She has also hosted sickle cell fundraisers and support groups for moms with children with sickle cell. She is actively educating others about the disease, while looking for ways to put sickle cell on the map. Jennifer has done an outstanding job not only as a mother, but a true advocate for sickle cell.
Related Content
-
MARAC Advisory Statement: Update About COVID-19December 23, 2021 – The Sickle Cell Di...
-
T-Boz: Vote on Tuesday Like Your Health Depends on ItAs a mother, I know that I have a respon...
-
Sickle Cell in Focus Conference 2019After another successful event at th...
-
Today’s Faces of Sickle Cell Disease: Pat Corley, RNIn 1979, while she was volunteering at a...
-
Living Rare, Living Stronger – NORD Patient and Family ForumRare family, we are back in person! The ...
-
Interview with Dr. Keith Wailoo on the journey of medical and social context in treating sickle cell diseaseKeith Wailoo, Professor of history and p...
-
Sickle Cell Community Health NetworkSickle Cell Community Health Network is ...
+myBinder