• Join Today!

Become a member and connect with:

  • An Active Online Community
  • Articles and Advice on SCD
  • Help Understanding Clinical Trials
learn more
patient support professionals

Carla Jones

Patient Support Professional
Nurse navigator
Levine Children’s Hospital
1000 Blythe Blvd.
Charlotte, North Carolina, United States

Anyone affected by sickle cell disease knows it is not just patients who need care, families need it too. At Levine Children’s Hospital, families find powerful advocates like nurse navigator Carla Jones.

Carla Jones helps ensure pediatric sickle cell patients stay on track with appointments, lab tests, medications, follow-ups and everything necessary to best manage their care. But Jones is also there to support parents who just learned that their newborn has been diagnosed with a serious, lifelong disease. She is the referral go-between who can relay clinical details from one specialist to another.

She is also a gentle teacher to pediatric patients, explaining medical realities in terms they can understand. For example, she tells preschoolers how normal blood cells are squishy like water balloons, but that some of their cells are hard and shaped like bananas, which causes problems that need special care.
Carla Jones describes her job as “amazing.” She says, “It’s especially gratifying to see parents realize that their children can lead normal lives and to see teens become empowered to take care of themselves.

view full profile

expertly curated content related to this topic

Don’t forget to join the oneSCDvoice community!

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close