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Trusted Resources: News & Events
Latest announcements and gatherings
P.O.W.E.R. Community Based Organization Training
Starting Feb 6, 2020
12 PM – 1:30 PM EST
If you are a community-based organization (CBO) that:
Sickle Cell Disease awareness initiatives
Supports individuals living with sickle cell disease, sickle trait and families
Helps find a universal cure for this life-threatening disease
SCDAA encourages you to join the P.O.W.E.R project community-based organizations (CBO) training.
The P.O.W.E.R Community Based Organization Training is designed to assist community based Organizations with resources and education, in order to strengthen their efforts in providing support services for sickle cell disease (SCD) patients.P.O.W.E.R Project uses the ECHO telecommunication model to reach community-based organizations and by offering online training services on emerging and current topics in Sickle Cell Disease.
Presenters are national leaders in their respective fields and the interactive format allows Community Based Organizations to learn from industry leaders without having to travel. We utilize a user-friendly webinar software to ensure the sessions are accessible for all levels of technological expertise.
people & placesIsaac OkelloIsaac Okello is a Sickle Cell Advocate f...
people & placesSickle Cell Thalassemia Patients NetworkSince April of 1992, the Sickle Cell Tha...
people & placesMolyn ChimaMolyn Chima is the Interim Public Health...
education & researchI Have Sickle Cell Disease. What Should I Know About Going Away to College?When it comes to taking care of yourself...
people & placesMaryland Sickle Cell Disease AssociationThe Maryland Sickle Cell Disease Associa...
videos & visualsWhat’s in your genes?https://www.youtube.com/watch?v=ggeqOj07...
education & researchIncreasing Educational Attainment in Adolescents with Sickle Cell DiseaseAdolescents with sickle cell disease (SC...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.