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Sickle Cell Disease and Sickle Cell Trait – SCDAA Brochure
Local groups, especially SCDAA community-based organizations, are welcome to customize it by adding their logo and contact information. You can see how this was customized for Illinois by SCDAI. If it is distributed without customization, use the national version with 1-800 number for contact.
This brochure was developed by Dr. Wanda Whitten-Shurney of SCDAA-Michigan Chapter for counseling for sickle trait in newborns, as well as adolescents and adults. SCDAA MARAC agrees with the nuances prioritization of updated info. SCDAA would like to encourage use of this brochure as a shared national resource and will keep its logo on the upper right corner. There is a lot more to sickle cell trait counseling (notably excellent materials in the CDC sickle cell trait toolkit) but this brochure is the kernel and the first step.
people & placesKathryn Hassell, MDDr. Hassell provides inpatient and outpa...
education & researchPediatric prescriber pratices of hyrdoxyurea in sickle cell diseaseHydroxyurea (HU) has been shown to be ef...
education & researchQuality of care in sickle cell disease: Cross-sectional study and development of a measure for adults reporting on a...Documented deficiencies in adult sickle ...
news & eventsWebinar Series: Sickle Cell Science: Path to Progress – Bone Marrow Transplants, Other Therapies, and Sickle C...To commemorate Sickle Cell Awareness Mon...
videos & visualsFighting Through Our Pain TV With Thomas J. Harrington MDhttps://www.youtube.com/watch?time_conti...
Community Center‘Every Time It’s A Battle’: In Excruciating Pain, Sickle Cell Patients Are Shunted AsideAmy Mason had toughed it out for hours o...
news & eventsThe Sickle Cell Association of New Jersey’s 10th Annual Statewide Sickle Cell Disease SymposiumOur goal is to improve and expand patien...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.