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Local groups, especially SCDAA community-based organizations, are welcome to customize it by adding their logo and contact information. You can see how this was customized for Illinois by SCDAI. If it is distributed without customization, use the national version with 1-800 number for contact.
This brochure was developed by Dr. Wanda Whitten-Shurney of SCDAA-Michigan Chapter for counseling for sickle trait in newborns, as well as adolescents and adults. SCDAA MARAC agrees with the nuances prioritization of updated info. SCDAA would like to encourage use of this brochure as a shared national resource and will keep its logo on the upper right corner. There is a lot more to sickle cell trait counseling (notably excellent materials in the CDC sickle cell trait toolkit) but this brochure is the kernel and the first step.
education & researchNeurocognitive and Psychological Effects of Persistent Pain in Pediatric Sickle Cell DiseaseBackground: Pain is a major complicatio...
education & researchDyspareunia is Associated With Chronic Pain in Premenopausal Women With Sickle Cell DiseaseObjectives: Pain is common in women wit...
news & eventsFSCDR’S Inaugural Behavioral Science Symposium Sickle Cell Disease: Matters of the HeartFSCDR’s Inaugural Behavioral Science S...
people & placesSusan Claster, MDDr. Claster graduated from the Universit...
Community CenterAdulting is especially difficult for youth with special health care needsThere are approximately 4.3 million adol...
news & events2nd Annual Caregivers Summit – Sickle Cell Community ConsortiumThe Sickle Cell Community Consortium (SC...
people & placesErica Esrick, MDDr. Erica Esrick is a pediatric hematolo...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.