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NICHQ joins the Sickle Cell Disease Association of America (SCDAA) to help focus attention on the need for research and treatment of sickle cell disease during September. The theme for 2022 is Sickle Cell Matters.
Sickle cell disease (SCD), an inherited blood disorder that is more prevalent in people of African and Latinx/Hispanic descent, affects approximately 100,000 Americans, and sickle cell trait affects an estimated 2 million individuals. People living with SCD experience acute pain crises, dangerous infections, and other serious health problems that can damage every organ in the body, requiring providers who are knowledgeable and understanding.
Join our efforts to bring attention to the unique experiences and challenges of people living with SCD and the variety of resources available to health care professionals! Use the hashtags #SickleCellAwarenessMonth and #SickleCellMatters2022 to help raise awareness on social media about sickle cell disease and sickle cell trait, and check out these helpful tools and resources.
education & researchThe Hazards of Hazardous Drug Labeling: Time to Revisit Hydroxyurea?Despite benefits in reducing pain crises...
education & researchElevated tricuspid regurgitant jet velocity, reduced forced expiratory volume in 1 second, and mortality in adults w...Cardiopulmonary disease is the leading c...
news & eventsSCDAA News Advisory: Partial Hold on Gene Therapy TrialOn December 20, the FDA placed a partial...
Community CenterListening to Sickle Cell Patients is Crucial During a CrisisI recently was admitted to the hospital ...
people & placesBiree Andemariam, MDDr. Biree Andemariam is a hematologist a...
people & placesSt. Louis Children’s HospitalThe St. Louis Children's Hospital Sickle...
Community CenterSickle Cell Disease in the Emergency Department: Confronting Barriers to Care“You’re too pretty to have a disease...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.