DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
Trusted Resources: News & Events
Latest announcements and gatherings
Readout From the First Lady’s Roundtable on Improving the Lives of Americans Living With Sickle Cell Disease
First Lady Melania Trump and the Health and Human Services Department (HHS) hosted a roundtable on “Improving the Lives of Americans Living With Sickle Cell Disease” in recognition of National Sickle Cell Disease (SCD) Awareness Month. For the first time since 1983, the White House has elevated this important issue with a Presidential Proclamation issued by President Trump on August 31, 2020.
The First Lady opened the roundtable by reaffirming the goal of finding a cure and highlighted the children’s well-being pillar of her Be Best initiative, noting that the effects of SCD often begin in early childhood. Mrs. Trump also pointed out that progress has been made through early identification and new life-saving therapies, but noted that there is still much more to do.
news & eventsRare Disease Day at Nationwide Children’sJoin us for the 4th Annual Rare Disease ...
people & placesAmy MasonAmy Mason is the Director of Annual Sick...
people & placesSickle Cell Foundation of MinnesotaSickle Cell Foundation of Minnesota (SCF...
education & researchPerceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of CareImportance: Sickle cell disease (SCD) i...
Community CenterSickle Cell Foundation NigeriaThe formation of the Sickle Cell Foundat...
Community CenterWhy You Don’t Hear Much About Sickle Cell AnymoreAbout 100,000 Americans have sickle cell...
news & eventsSickle Cell Matters Virtual Walk 2021The Sickle Cell Disease Matters Walk 202...
send a message
Don’t forget to join the oneSCDvoice community!
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.