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Trusted Resources: News & Events
Latest announcements and gatherings
RARE Drug Development Symposium
The RARE Drug Development Symposium is a two-day interactive event in partnership with The Penn Medicine Orphan Disease Center that focuses on educating both beginners and advanced participants on the drug development process. Here, all members of the rare disease community are encouraged to explore their role in the rare disease drug development process in new and innovative ways.
This personalized experience is dedicated to empowering the rare disease community to continue to push forward on necessary treatments and cures, despite experiencing setbacks as a result of COVID-19. We are excited to offer poster presentations and speakers on engaging new topics, including CureAccelerator Live!
June 9 – 11, 2021
This event has ended.
people & placesSickle Cell Disease Association of Florida, Inc (SCDAF)The Sickle Cell Disease Association of F...
people & placesSimone C. Eastman Uwan, MDDr. Simone Eastman Uwan was born in Guya...
videos & visualsSickle Cell Disease: Treatments – PAINWeekhttps://www.youtube.com/watch?v=llqCdRNK...
people & placesSickle LifeSickle Life is a sickle cell disease adv...
people & placesLashawn HutchinsonLashawn Hutchinson is CEO at Shawn's Tes...
news & eventsWalk for Sickle Cell Disease — Greater Boston Sickle Cell Disease AssociationWe take the safety and wellness of each ...
videos & visualsJazz’ Journey With Sickle Cellhttps://www.youtube.com/watch?v=OMC5wOyD...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.