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Trusted Resources: News & Events
Latest announcements and gatherings
The RARE Drug Development Symposium is a two-day interactive event in partnership with The Penn Medicine Orphan Disease Center that focuses on educating both beginners and advanced participants on the drug development process. Here, all members of the rare disease community are encouraged to explore their role in the rare disease drug development process in new and innovative ways.
This personalized experience is dedicated to empowering the rare disease community to continue to push forward on necessary treatments and cures, despite experiencing setbacks as a result of COVID-19. We are excited to offer poster presentations and speakers on engaging new topics, including CureAccelerator Live!
June 9 – 11, 2021
This event has ended.
people & placesWilliam E. Proudford Sickle Cell FundThe William E. Proudford Sickle Cell Fun...
videos & visualsFOA TA Webinar: Sickle Cell Disease Clinical Data Collection Platformhttps://www.youtube.com/watch?v=8afutDfe...
news & eventsSickle Cell: Call The Midwife Shines Spotlight on DiseaseViewers and people with sickle cell dise...
Community CenterToday’s Faces of Sickle Cell Disease: Marqus ValentineWhen Marqus Valentine went to junior col...
people & placesAde AdeyokunnuAde Adeyokunnu manages the day-to-day op...
people & placesSickle Cell Community Advisory Council of Northern CaliforniaThe Sickle Cell Community Advisory Counc...
videos & visualsOur Sickle Life Season 03 Episode 04 – Hear Our Storieshttps://www.youtube.com/watch?v=2uD-Y0t-...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.