Trusted Resources: Evidence & Education
Scientific literature and patient education texts
A Guide to Living With Sickle Cell Disease: Define Yourself, Define Your Life
source: The Sickle Cell Community Consortium
Define yourself, define your life. No matter how old you are or how severe your sickle cell disease is, you can start where you are and learn more about sickle cell disease. The more you know, the more options you have and more options exist now than ever before. Advances are being made, and there is hope.
This booklet was inspired, designed and created by your brothers and sisters in the sickle cell community to encourage, uplift and inform you. We want you to know you are not alone. Sickle cell is part of our lives, but it does not define us and it cannot break us. Join us as we redefine what it means to live with sickle cell.
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