Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
The Sickle Cell Support Foundation of Jamaica (SCSFJ)Sickle Cell Unit (SCU)
University of the West Indies (UWI)
Email Phone Web
In October 1992, sickle cell patients, Camille Daley and Morette Wright, made the decision to start the Sickle Cell Support Club of Jamaica. After over two decades of providing support to persons with sickle cell disease, lobbying for improved benefits and raising public awareness, this non-profit, voluntary organisation was relaunched as the Sickle Cell Support Foundation of Jamaica (SCSFJ) in April 2015.
-Provide social and emotional support to patients and families affected by sickle cell disease and share information and coping strategies to empower individuals to manage the disorder effectively.
-Heighten awareness of the various sickle cell disorders which exist through public education programs and to dispel the many prevailing myths and misconceptions which surround the illness.
-Act as a public advocate on behalf of individuals affected by sickle cell disease.
-Foster and support personal development and self-actualization of sickle cell patients with assistance through grants for remedial education, skills training and micro-entrepreneurial ventures.
-Provide limited assistance with medical expenses to needy sickle cell patients.
-Establish links and exchange information, ideas and strategies with regional and international sickle cell organizations.
Data Brief: Healthcare Utilization for Vaso-Occlusive Episodes by People with Sickle Cell Disease in California and ...Many people with sickle cell disease (SC...
Understanding the Impact of Sickle Cell Diseasehttps://www.onescdvoice.com/wp-content/u...
Today’s Faces of Sickle Cell Disease: Rodrick MurrayRodrick Murray was 3 months old when he ...
In Support of Rare Disease Patients Impacted by COVID-19, NORD Launches Premium and Limited Medical Relief ProgramUnited with more than 25 million America...
Greenville program tries team approach to improve lifespan of sickle cell disease patientsDr. Alan Anderson who was involved with ...
Sickle Cell Disease: Why Is It Hard to Talk About Our Pain?https://www.youtube.com/watch?v=63pgiclv...
Hole in the Wall Gang CampThe Hole in the Wall Gang Camp was found...