• Join Today!

Become a member and connect with:

  • An Active Online Community
  • Articles and Advice on SCD
  • Help Understanding Clinical Trials
patient education

A Guide to Living With Sickle Cell Disease: Define Yourself, Define Your Life

key information

source: The Sickle Cell Community Consortium

summary/abstract:

Define yourself, define your life. No matter how old you are or how severe your sickle cell disease is, you can start where you are and learn more about sickle cell disease. The more you know, the more options you have and more options exist now than ever before. Advances are being made, and there is hope.

This booklet was inspired, designed and created by your brothers and sisters in the sickle cell community to encourage, uplift and inform you. We want you to know you are not alone. Sickle cell is part of our lives, but it does not define us and it cannot break us. Join us as we redefine what it means to live with sickle cell.

read more

expertly curated content related to this topic