DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
Trusted Resources: Community Center
Online groups, photo galleries and blogs
The challenges of being a caregiver to my cousin with sickle cell
When I embarked on this journey as a caregiver for my cousin Ada, who has sickle cell disease, I soon realized that this path, brimming with love and dedication, also presented an unseen battle: caregiver burnout. Following are some of the frequent challenges I’ve faced — and triumphed over — as a caregiver to my cousin.
Since I started caregiving, sleepless nights have become my constant companion. There are days when all I want to do is sleep without any disturbances, but the unpredictable pain crises that torment my cousin make peaceful sleep a rare luxury. Each creak and whimper transforms into a symphony of worry echoing in my ears.
As time has passed, the lack of sleep has worn down my body and mind. However, I still have to summon the strength to comfort and support Ada, even when my own fatigue threatens to overwhelm me.
Related Content
-
videos & visualsSickle cell warrior documentaryhttps://www.youtube.com/watch?v=ZxC4vtN2...
-
education & researchUnderstanding patterns and correlates of daily pain using the Sickle cell disease Mobile Application to Record Sympt...Patients with sickle cell disease (SCD) ...
-
Community CenterThe Bad Blood: My Life With Sickle Cell AnaemiaI wake up with an active volcano for a c...
-
Community CenterThe Unveiling of Sickle Cell Anemia – A Life’s StoryThe doctors and nurses that I trusted so...
-
education & researchSickle Cell Disease, More Than Just Pain: The Mediating Role of Psychological SymptomsObjectives: Perceived stress is associa...
-
news & eventsSCDAA And MedicAlert Pilot Program ApplicationSCDAA and MedicAlert Pilot Program Impr...
-
videos & visualsIntroducing: The I Believe in Therapy Campaignhttps://www.youtube.com/watch?v=KsHqXvAF...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.