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“You don’t look sick.”
That’s something I hear all the time. It’s hard to get people to understand that I don’t look like what I’m going through.
I have sickle cell disease, a complex genetic blood disorder that affects the shape of red blood cells. People with sickle cell disease inherit an abnormal hemoglobin gene that prevents the proper delivery of oxygen to the body’s organs, which is why the form of the disease I have is also referred to as sickle cell anemia. The disease is characterized by unpredictable, severe, and painful events known as “sickle-cell pain crises.”
videos & visualsMy Red Cell Exchangehttps://www.youtube.com/watch?v=HTcLwgLE...
education & researchWhen Pain Can Be Eased by Drinking Enough WaterWhen he was only seven, and on holiday a...
news & eventsNew Guidelines for Managing Sickle Cell Disease Presented at ACP Internal Medicine MeetingNew guidelines for therapeutic strategie...
people & placesKwamie Lassiter FoundationThe mission of the Kwamie Lassiter Found...
education & researchSickle Cell Anemia Treatment & ManagementThe National Institutes of Health advise...
videos & visualsWorld Sickle Cell Day: Sisters Living With Sickle Cell, Hoping for a Curehttps://www.youtube.com/watch?v=y3Bg0RJv...
news & eventsSiri saves sick girl from Harvey floodwatersStranded outside in the rising waters of...
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