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“You don’t look sick.”
That’s something I hear all the time. It’s hard to get people to understand that I don’t look like what I’m going through.
I have sickle cell disease, a complex genetic blood disorder that affects the shape of red blood cells. People with sickle cell disease inherit an abnormal hemoglobin gene that prevents the proper delivery of oxygen to the body’s organs, which is why the form of the disease I have is also referred to as sickle cell anemia. The disease is characterized by unpredictable, severe, and painful events known as “sickle-cell pain crises.”
education & researchPsychosocial and Clinical Risk Factors Associated With Substance use in Observational Cohort of Patients With Sickle...Patients with sickle cell disease (SCD) ...
education & researchSickle Cell Disease: Pain ManagementPain is a long-lasting problem for peopl...
people & placesKwamie Lassiter FoundationThe mission of the Kwamie Lassiter Found...
news & eventsSiri saves sick girl from Harvey floodwatersStranded outside in the rising waters of...
news & events‘I Have Sickle Cell, but Sickle Cell Doesn’t Have Me’: While Raising Awareness, Chicago Man, 25, Dies From...Elijah Powell was determined to live his...
videos & visualsKhale’iya – Living with Sickle Cell Diseasehttps://www.youtube.com/watch?v=NDQPYzIy...
Community CenterToday’s Faces of Sickle Cell Disease: Tosin OlaDuring a long hospitalization in 2005, T...
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