DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
Trusted Resources: Community Center
Online groups, photo galleries and blogs
An Almost-Love Story
I left after three hours, but after that I found myself checking on him constantly, every 30 minutes or so. He kept saying he was fine. But a few days later, he ended up in the hospital. When I went to visit him, it was a shock — I had never seen a “sickler” before. I saw the yellow eyes. I saw how skinny he was.
He kept wincing from the pain, but putting up a brave act. “They’re saying my kidneys are failing and stuff,” he finally said. I was so freaked out.
A few mornings later, I planned to go back and bring him some Ogbono soup, his favorite. It’s a concoction of ground African bush mango seeds, cooked onions and crayfish with dark, leafy vegetables swimming in bright red palm oil. The plan was for my mom to make it but to say that I made it. So we began cooking the soup. Then we boiled water to cook semolina flour for fufu to go with it.
Related Content
-
education & researchStudent perspectives on managing sickle cell disease at schoolObjective: The study objective was to i...
-
Community CenterOur Healthcare System Abandons Adult Sickle Cell PatientsWhen Janoi Burgess was a child, he thoug...
-
Community CenterTionne ‘T-Boz’ Watkins to dish on her Incurable disease, TLC Stardom and left eye’s death in new m...Many storms have come and gone...
-
education & research504 plan for education because of sickle cell diseaseYour child qualifies for an education pl...
-
Community CenterMy Story With Sickle Cell Disease – CortneyMy name is Cortney and I was diagnosed w...
-
news & eventsSickle cell patients in UK survey, especially those 16 to 20, voice problems with care and pain relief givenIn a survey, patients across the...
-
videos & visualsSickle cell adult and pediatric provider interview – Dr Nirmish Shahhttps://www.youtube.com/watch?v=6fFmmPrd...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.