Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Understanding patterns and correlates of daily pain using the Sickle cell disease Mobile Application to Record Symptoms via Technology (SMART)
source: British Journal of Haematology
year: 2018
authors: Jonassaint CR, Kang C, Abrams DM, Li JJ, Mao J, Jia Y, Long Q, Sanger M, Jonassaint JC, De Castro L, Shah N
summary/abstract:Patients with sickle cell disease (SCD) manage most pain symptoms or events at home without seeking medical help (Smith et al, 2008). Thus, to have the largest impact on patients’ functioning and quality of life, we should focus more on assessment and treatment of daily pain rather than episodic acute pain that requires emergent care (Amr et al, 2011). We need innovative approaches to better understand daily pain patterns and factors associated with changes in pain intensity and frequency. In the current study, we use a mobile e-diary app to describe day-to-day patterns in SCD-related pain symptoms and identify the clinical and demographic factors associated with differences in daily pain level among adult patients with SCD.
Three sickle cell centres, located in large urban medical centres, used the sickle cell Mobile Application to Record symptoms via Technology (SMART) for ongoing studies. This study combines data from two independent clinical trials with similar daily pain tracking protocols (NCT01833702, NCT02384590). The trial conducted at University of Pittsburgh (Pitt) and Vanderbilt University (Vanderbilt) asked participants to use SMART for at least 6 months, while the clinical study at Duke University (Duke) asked participants to use the app for at least 1 month. Eligible participants were all aged >=18 years with a confirmed diagnosis of SCD.
organization: University of Pittsburgh Medical Center, Pittsburgh, PA, USA; Northwestern University, Chicago, IL, USA; University of California at Los Angeles, Los Angeles, CA, USA; Duke University, Durham, NC, USA; University of Pennsylvania, Philadelphia, PA, USA; Vanderbilt University, Nashville, TN, USADOI: 10.1111/bjh.14956
read more full text
Related Content
-
Maternal Sickle Cell Disease and Twin Pregnancy: A Case Series and Review of the LiteratureObjectives: Maternal sickle cell diseas...
-
MARAC Statement: Health Insurance Coverage for Hematopoietic Stem Cell Transplant for Sickle Cell Disease from HLA-m...Hematopoietic stem cell transplant for s...
-
Grant Recipient Uses Mobile Device Observation in Sickle Cell Pain StudyTechnology takes center stage in a new...
-
Pediatricians’ Disclosure and Documentation of Sickle Cell Trait Found on Newborn Screening: Barriers and Possible...Introduction: All states in the US requ...
-
Real Stories From People Living With Sickle Cell DiseaseMikeia Green was born with Sickl...
-
Sick Cells Documentaryhttps://vimeo.com/151876398...
-
Kyriako Damavoletes Talks About the Stigma of Sickle Cell DiseaseKyriako Damavoletes has HbS beta thalass...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.