Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Global Genes / Rare Foundation Alliance
28 Argonaut, Suite 150Aliso Viejo, California, United States
Email Phone Web
Global Genes® is a 501(c)(3) non-profit corporation. Our Leadership Team, Board of Directors and Advisory Teams are committed to programs centered on our core mission of working to eliminate the challenges of rare disease.
Global Genes® is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon®. What began as a grassroots movement in 2009, with just a few rare disease parent advocates and foundations, has since grown to over 500 global organizations.
Many of our leaders support children, family or friends with rare diseases. They understand the fight on a deep personal level and keep in mind the needs of our community at all times. Global Genes® and our leaders are committed to ensuring that our programs support our worldwide mission of awareness and outreach, education, innovation and technology and research, and collaborative partnerships.
You can get involved with us through educational programs such as rare webinars, rare toolkits, annual events, patient advocacy summits, or through collaborative partnership programs.
+myBinderRelated Content
-
SCDA-West Alabama Chapter – NorthportThe Sickle Cell Disease Association of W...
-
The Sickle Cell Foundation of TennesseeThe Sickle Cell Foundation of Tennessee ...
-
Today’s Faces of Sickle Cell Disease: Deidra Flowers-WilliamsAt six months of age, Deidra Flowers-Wil...
-
Understanding the Impact of Sickle Cell Diseasehttps://www.onescdvoice.com/wp-content/u...
-
Sickle Cell Disease Association of America, Inc. Hires New President & CEOThe Board of Directors for Sickle Cell D...
-
Sickle Cell Stories: Office of Minority Health, U.S. Department of Health and Human Serviceshttps://www.youtube.com/watch?v=HFojyaji...
-
Pfizer and the national newspaper publishers association collaborate to raise awareness of sickle cell disease and n...Pfizer Inc. and the National Newspaper P...
