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COVID-19 Resources for Non-Profit Leaders and the Community | National Organization for Rare Disorders
The health and safety of those with rare diseases and their caregivers are always our top priorities at the National Organization for Rare Disorders (NORD). We know our members are working tirelessly to support their communities during this global crisis. Rare disease organizations have felt the impact of the Coronavirus pandemic on all elements of our work including mission-critical programs, research, patient assistance, events, meetings and other activities.
We stand in solidarity with the rare community and would like to extend support for those impacted by COVID-19, directly and indirectly. By sharing resources on how to be prepared and seek proper care under these unusual circumstances, we hope to educate and empower the community during this unprecedented time.
news & eventsRARE Drug Development SymposiumThe RARE Drug Development Symposium is a...
education & researchImproving the Quality of Care for Adolescents and Adults With Sickle Cell Disease—It’s a Long RoadThe World Health Organization defines qu...
people & placesPat Corley, RNPat Corley is a retired nurse coordinato...
videos & visualsImproving the Lives of Americans With Sickle Cell Disease Roundtablehttps://www.youtube.com/watch?v=qhSPkDA1...
Community CenterToday’s Faces of Sickle Cell Disease: Linda Thomas WadeLinda Thomas is a health care educator, ...
news & eventsWhat It’s Like to Live With Sickle-CellWhen Damian Jackson was a young man, som...
news & eventsLiving Rare, Living Stronger – NORD Patient and Family ForumRare family, we are back in person! The ...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.