Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
The Sickle Cell Care Coordination Initiative
UCSF Benioff Children's Hospital747 52nd Street
Oakland, California, United States
Email Phone Web
The Sickle Cell Care Coordination Initiative (SCCCI) seeks to improve care provided to youth and adults with sickle cell disease in Northern California. We are one of 8 programs in the U.S. funded by the National Heart, Lung and Blood Institute (NHLBI) to use implementation science to improve outcomes for individuals with sickle cell disease between the ages of 15 and 45 years.
The SCCCI brings together experts in sickle cell disease clinical care and clinical research, health services research, implementation and participatory research and emergency medicine. Their core team also includes individuals with sickle cell disease, their family members and dedicated community members.
Their aims are:
-increase the number of youth and adults with sickle cell disease who receive preventive care;
-support providers so they increase their adherence with evidence-based guidelines for sickle cell disease care; and
-support youth and adults with sickle cell disease to access needed resources within their communities to improve their quality of life and quality of care. The primary goal of the center is to decrease the preventable morbidity and mortality that this population is vulnerable to.
+myBinderRelated Content
-
David Beidler, PhDAs the Translational Sciences lead for t...
-
Donald Rucknagel, MD, PhDDr. Rucknagel pioneered the use of incen...
-
Acute Care Utilization in Pediatric Sickle Cell Disease and Sickle Cell Trait in the USA: Prevalence, Temporal Trend...The objective of this study was to analy...
-
Fondation Pierre FabreRecognized as a public utility since 199...
-
How Sickle Cell Anaemia Impacts Families and How We Can Helphttps://www.youtube.com/watch?v=5GUiuXQ9...
-
Clinical Transformation in Care for Patients With Sickle Cell Disease at an Urban Academic Medical CenterThis article demonstrates effects on uti...
-
Foundation For Sickle Cell Disease ResearchThe Foundation for Sickle Cell Disease R...
