Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Transition Toolkit – Sickle Cell Disease Coalition
source: Sickle Cell Disease Coalition
year: N/A
summary/abstract:What is transition?
Transition is when a person moves from their childhood doctor, to an adult doctor. This happens from the ages of 18-30.
Transitioning from childhood to adult care can be a hard time for people living with sickle cell disease. People transitioning have the highest number of hospital visits and repeat hospital visits compared to older people with sickle cell disease.
When people with sickle cell disease do not have the proper information to transition, there is a greater chance of having a shorter life. The Sickle Cell Disease Coalition has put together important information that will help those going through transition.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.