Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Teens with Sickle Cell Disease Moving from Pediatric Care to Adult Care
source: St. Jude Children’s Research Hospital
year: N/A
summary/abstract:Moving from pediatric (children’s) care to adult care can be one of the hardest changes you will face as a patient with sickle cell disease.
As a family you must find a balance between concerned parents who want to handle all the details and teens who want to be completely independent.
Many issues must be considered when moving from a pediatric hematologist (sickle cell doctor) to a hematologist who treats adults.
This booklet will help you address some of these issues. Feel free to ask the St. Jude staff questions you might have about making this transition (change).
At the back of the booklet are several pages for you to write notes and questions. You will also find a glossary of terms that you might encounter during this time of change.
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