Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Parents Handbook for Sickle Cell Disease
source: State of California Department of Health Services, Genetic Disease Branch
year: 2015
summary/abstract:This is a parents handbook for sickle cell disease from The Virginia Sickle Cell Awareness Program. It contains:
-Parent Handbook Part I
-Parent Handbook Part II
Part I is relevant for parents with kids from birth to six years of age, and Part II is relevant for parents with kids of age six to eighteen years.
This handbook was developed in response to requests from parents of children with sickle disease for more detailed information that they could refer back to as needed. The parents’ role in early identification of infection and other problems is difficult yet so critical to the health of their child particularly during the first few years of life.
read moreRelated Content
-
Study protocol for a randomized controlled trial to assess the feasibility of an open label intervention to improve ...BACKGROUND: Community health workers (C...
-
Today’s Faces of Sickle Cell Disease: Kirti DasuKirti Dasu was born in South East India ...
-
The current state of sickle-cell trait: Implications for reproductive and genetic counselingSickle cell trait (SCT) is unique among ...
-
5 Tips to Prevent a Crisishttps://www.youtube.com/watch?v=XazFaUdm...
-
A Britain’s Got Talent contestant revealed how she turned to singing following the death of her sonA Britain's Got Talent contestant whose ...
-
Playing through sickle cellEighteen minutes in with no break, Billy...
-
PROFILE: Asiata, 90-year-old sickler who has 5 children and has gone to Mecca 13 timesAsiata Onikoyi-Laguda, the woman believe...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.