Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Guide To Living With Sickle Cell Disease: Define Yourself, Define Your Life – Spanish
source: The Sickle Cell Community Consortium
year: N/A
summary/abstract:Define yourself, define your life. No matter how old you are or how severe your sickle cell disease is, you can start where you are and learn more about sickle cell disease. The more you know, the more options you have and more options exist now than ever before. Advances are being made, and there is hope.
This booklet was inspired, designed and created by your brothers and sisters in the sickle cell community to encourage, uplift and inform you. We want you to know you are not alone. Sickle cell is part of our lives, but it does not define us and it cannot break us. Join us as we redefine what it means to live with sickle cell.
read more
Related Content
-
Barriers and Facilitators to Care for Individuals With Sickle Cell Disease in Central North Carolina: The Emergency ...Background: Sickle cell disease (SCD) i...
-
Mental healthTreatment for depression and anxiety ...
-
Stepping Up: Calvanay’s advicehttps://www.youtube.com/watch?v=_x9Dhrim...
-
Sickle Cell Patient Finds a Better way of Living Through Apheresishttps://www.youtube.com/watch?v=BSTUaeFz...
-
These people living with an invisible condition are doing their best to raise awareness about itIn 2013, an inquest found a failure to f...
-
Lia – A 2014 Short Filmhttps://www.youtube.com/watch?v=TcX_v6Os...
-
Real Stories From People Living With Sickle Cell DiseaseMikeia Green was born with Sickl...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.