Trusted Resources: Evidence & Education

Scientific literature and patient education texts

Back to Evidence & Education / Reference Materials

Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action

key information

source: National Academies of Sciences, Engineering, and Medicine

year: 2020

summary/abstract:

This consensus study report was commissioned by the Office of Minority Health at the Office of the Assistant Secretary for Health at the U.S. Department of Health and Human Services to provide a comprehensive approach to the management and potential interventions for sickle cell disease (SCD), a genetic condition affecting approximately 100,000 people in the United States and millions worldwide. The report sets forth a substantial agenda beginning with the important need for information across the life span to characterize the trajectory of SCD and the antecedents of later complications.

 

Chapter: 1 – Introduction

Chapter: 2 – Societal and Structural Contributors to Disease Impact

Chapter: 3 – Screening, Registries, and Surveillance

Chapter: 4 – Complications of Sickle Cell Disease and Current Management Approaches

Chapter: 5 – Health Care Organization and Use

Chapter: 6 – Delivering High-Quality Sickle Cell Disease Care with a Prepared Workforce

Chapter: 7 – Developing and Delivering the Next Generation of Therapies

Chapter: 8 – Community Engagement and Patient Advocacy

Chapter: 9 – Strategic Plan and Blueprint for Sickle Cell Disease Action

 

read more

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close