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Sickle Life is a sickle cell disease advocacy group founded in 2013 by Dr. Sefakor Enam Bankas to champion the cause of persons living with sickle cell disease in Ghana through education and awareness creation about the condition. Initial advocacy was through content generated and shared via a blog, www.sicklelife.wordpress.com. The objective of which was to expose readers to the reality of living with sickle cell disease in a credible and relatable manner through the experience of patient and doctor and empower them to make informed choices regarding sickle cell disease based on the knowledge acquired.
Sickle Life has grown over the period to include several volunteers and writers, multiple social media accounts, participation in several sickle cell advocacy activities and a website, to consolidate all programs and activities.
Mission and Vision:
-To provide education and information about sickle cell disease to empower you make an informed life choice.
-We envisage, through our activities, a time when sickle cell disease will be a topic of daily discussion and not an illness relegated to the background and for whom no one advocates but its own patients and their families.
-We hope for a day, when persons living with sickle cell disease can openly speak about it without fear of discrimination.
-With these we can be assured that one day, soon, people will be more concerned about their sickle cell status and will make life choices based on knowledge on the condition.
-With these, the incidence of sickle cell disease in Ghana can be significantly reduced from its current 2% of annual births.
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