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There are unexpected things that happen that you really can’t prepare for.
Away from home for the first time attending a two-week summer camp, Johanne Konan was expecting a big hug from her two daughters – Elisa and Ines — on their return.
“When the bus pulled up, I thought they would have come running to me, saying ‘We missed you mom and we love you’,” said the Ivory Coast immigrant. “Instead, the first words out of their mouths were, ‘Can we go back’. I was stunned.”
After the initial shock wore off, Konan and George Ofori were relieved to know that their girls – they were born with sickle cell – relished their time at Camp Jumoke.
news & eventsCelebratory Scholarship Virtual Gala – Michelle’s House (SCDAA SC)Living with Sickle Cell Disease (SCD) du...
news & eventsHealthwell Foundation Sickle Cell Disease FundThe HealthWell Foundation®, an independ...
news & events2021 WEPSCF Rockin’ the Red – 16th Annual EventJoin us for a Zoom gathering as we celeb...
news & eventsCamp Sickle StarsCamp Sickle Stars is the only camp in th...
news & eventsEx-rutgers stars Devin and Jason McCourty top $1M in fundraising for charityAbout 200 donors showed up Saturday afte...
news & eventsP.O.W.E.R. Community Based Organization TrainingCost: Free Starting Feb 6, 2020 12 PM ...
news & eventsHemoglobinopathy Counselor Training Course – VIRTUALUPDATE! 2020 Hemoglobinopathy Counselor ...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.