Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Sickle Cell Community Consortium
525 Tribble Gap RoadBox 1195
Cumming, Georgia, United States
Email Phone Web
The Sickle Cell Community Consortium is a US-based non-profit formed in 2014 to “harness and amplify the power of the patient voice”. The Consortium is comprised of sickle cell community-based organizations (CBOs), patient and caregiver advocates, community partners and medical and research advisers. These stakeholders collectively form the General Assembly of CBOs and Advocates, the decision-making body of the Consortium. The Consortium acts as an organizing entity providing the framework for the stakeholders of the General Assembly to apply a model of Collective Impact to define problems and gaps in the sickle cell community, identify strategies to address those needs and gaps, and determine the CBO, Community, and Corporate partnerships best equipped to implement those strategies to achieve significant and sustainable change.
Related Content
-
Successful utilization of an electronic pain diary in a multinational phase 3 interventional study in pediatric sick...Background: Patients with sickle cell a...
-
McCourty twins praise aunt who lost battle with sickle cell disease for ‘defying the odds’Twin brothers Jason and Devin McCourty s...
-
Paulette E. Forbes, MPH, MS, APNMs. Paulette E. Forbes serves as an inpa...
-
Practice variation in emergency department management of children with sickle cell disease who present with feverOBJECTIVES:Urgent medical evaluation is ...
-
FDA Advisory Committee Recommends Approval of Endari™ from Emmaus Life Sciences for the Treatment of Sickle Cell D...Emmaus Life Sciences Inc. announced toda...
-
Minority Health Counts: Building a More Equitable Community SummitBy Supporters of Families with Sickle Ce...
-
Webinar Series: Sickle Cell Science: Path to Progress – Bone Marrow Transplants, Other Therapies, and Sickle C...To commemorate Sickle Cell Awareness Mon...