Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Sickle Cell Community Consortium
525 Tribble Gap RoadBox 1195
Cumming, Georgia, United States
Email Phone Web
The Sickle Cell Community Consortium is a US-based non-profit formed in 2014 to “harness and amplify the power of the patient voice”. The Consortium is comprised of sickle cell community-based organizations (CBOs), patient and caregiver advocates, community partners and medical and research advisers. These stakeholders collectively form the General Assembly of CBOs and Advocates, the decision-making body of the Consortium. The Consortium acts as an organizing entity providing the framework for the stakeholders of the General Assembly to apply a model of Collective Impact to define problems and gaps in the sickle cell community, identify strategies to address those needs and gaps, and determine the CBO, Community, and Corporate partnerships best equipped to implement those strategies to achieve significant and sustainable change.
+myBinderRelated Content
-
Acute Chest Syndrome – A HRSA EMBRACE Projecthttps://www.youtube.com/watch?v=wRzTQfhG...
-
Acute Vaso-Occlusive Pain is Temporally Associated With the Onset of Menstruation in Women With Sickle Cell DiseaseBackground: Acute vaso-occlusive pain e...
-
Sickle cell disease in the emergency departmentAcute painful episodes are the most comm...
-
SCDAA 2023 National Abstract CompetitionIf you are a researcher, community-based...
-
Surprise of a lifetime: Devin McCourty gives away two Super Bowl LIII ticketsBrunel Etienne says one his childhood dr...
-
Children’s Hospital of WisconsinThe Sickle Cell Research Program at Chil...
-
GBT expands sickle cell disease pipeline with worldwide licensing agreement for inclacumab for the treatment of vaso...Global Blood Therapeutics, Inc...
