The Sickle Cell Association of Kentuckiana

The Sickle Cell Association of Kentuckiana, Inc. (SCAK) is a tax-exempt not-for-profit organization that provides education, support, and advocacy for individuals with sickle cell disease and their families. SCAK is dedicated to increasing awareness of this disease and supporting endeavors that assure prompt and appropriate medical care. SCAK, founded in October 2000, has been an advocate and resource for patients and families throughout Kentucky and Southern Indiana. Thus far, this has been achieved through support groups, community outreach opportunities, and efforts to establish a comprehensive Sickle Cell Center of Excellence. SCAK currently has approximately 50 members and is continuing to grow.

One major goal is to establish a comprehensive Sickle Cell Center of Excellence and to build the infrastructure to support that program. The center of excellence will provide comprehensive psychological, social, and medical care to patients and families affected by the disease. The existence of SCAK in establishing a network of communication throughout Kentuckiana to provide information to individuals and families living with sickle cell disease is a critical supporting component of this initiative.