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Standing Up for Sickle Cell
The Sickle Cell Disease Association of America, Inc., joins the Foundation for Sickle Cell Disease Research (FSCDR) in condemning the use of sickle cell disease (SCD) as a punchline on the HBO Max show Velma. For the over 100,000 Americans impacted by sickle cell and their families, this disease is anything but a laughing matter. Stereotypes and misinformation reinforced by media clips such as this have real-life consequences.
Sickle cell patients struggle to be taken seriously and receive proper care, even when they present with life-threatening symptoms in the emergency room. As we work to change the perception of sickle cell and increase education surrounding this condition, insensitive and inappropriate jokes like these work against progress and contribute to the spread of misinformation. We must do better and encourage people to treat rare diseases with the respect they are due. #SickleCellIsNotAJoke
people & placesDora Clayton-Jones, RN, PhD, CPNP-PCDr. Dora Clayton-Jones is an Assistant P...
Community CenterToday’s Faces of Sickle Cell Disease: Marqus ValentineWhen Marqus Valentine went to junior col...
news & eventsSickle Cell Treatment ‘Life-Changing’ for Brockton BrothersEmmanuel “Manny” Johnson, 21, of Bro...
Community CenterCrux of the matter with Elsie: Sexual Disposition of Sickle Cell WarriorsWhether we like it or not, sex is import...
people & placesAhmar Urooj Zaidi, MDAhmar Urooj Zaidi is assistant professor...
news & eventsSiri saves sick girl from Harvey floodwatersStranded outside in the rising waters of...
education & researchNon-invasive imaging of oxygen extraction fraction in adults with sickle cell anaemiaSickle cell anaemia is a monogenetic dis...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.