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Sickle Cell Treatment ‘Life-Changing’ for Brockton Brothers
Emmanuel “Manny” Johnson, 21, of Brockton was the first patient to participate in a novel sickle cell clinical trial at the Dana-Farber/Boston Children’s Cancer and Blood Disorders Center — taking the risk for the sake of his little brother, who has the same disease.
Staying at the hospital for five or six hours every month for a blood transfusion was something that Johnson described as “a regular thing.” He had been receiving transfusions since he was 4-years-old after sickle cell caused him to have two mild strokes.
Now, Johnson hasn’t had a transfusion in nine months, thanks to the clinical trial. The trial wasn’t easy, but one thing motivated Johnson to stay strong — his 7-year-old brother, Aiden, who also has sickle cell disease.
people & placesMaria Hartleben, LCSWMaria Hartleben is a licensed clinical s...
videos & visualsSickle Cell Disease Can’t Stop Alliyahhttps://www.youtube.com/watch?v=pcFdP9cq...
Community CenterSickle Cell Foundation of Georgia, Inc.Since 1971, the Sickle Cell Foundation o...
videos & visualsConstance Benson Cured of Sickle Cell, Speaking at Sickle Cell Disease & Gene Editing Briefing in DChttps://www.youtube.com/watch?v=ROtPSLJl...
Community CenterA Sickle Cell Warrior Survival Story— Timi Edwin“When I was 10, I was flogged by a tea...
education & researchHealth-related quality of life at 1 Year in the drepagreffe trial comparing chronic transfusion to transplantation i...Health is not just defined as the absenc...
education & researchRed blood cell transfusions during sickle cell anemia vaso-occlusive crises: a report from the magnesium in crisis (...BACKGROUND: Little is known about red b...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.