Google
Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Stress and the Home Environment in Caregivers of Children With Sickle Cell
source: Journal of Pediatric Psychology
year: 2020
authors: Taniya E Varughese, Catherine R Hoyt, Allison J L’Hotta, Princess A Ikemenogo, Seth G Howdeshell, Ashley J Housten, Regina A Abel, Allison A King
summary/abstract:Objective:
Caregivers of young children with chronic illnesses are at high risk for elevated levels of stress and mental health symptoms. This study examined stress and mental health symptoms as well as the socioeconomic status (SES) and home environments of a cohort of caregivers of infants and toddlers with sickle cell disease (SCD).
Methods:
Forty-two caregivers of infants and toddlers (aged 1–34 months) with SCD completed the Brief Symptom Inventory (BSI) and Parent Stress Index (PSI). The Home Observation for Measurement of the Environment (HOME) was used to assess family living environments.
Results:
Compared to test norms, caregivers reported high levels of situational/demographic life stress [mean difference (MD) 5.7, p = .003] and child distractibility/hyperactivity (MD 3.62, p = .001) on the PSI. However, no significant differences in psychological symptoms of distress were noted on the BSI. Caregivers scored significantly lower than norms on PSI subdomains of acceptability (MD −1.88, p = .03), competence (MD −3.11, p = .002), depression (MD −3.94, p < .001), and the overall parent domain (MD −12.55, p = .005). Significant correlations were found between PSI scores and the HOME and between SES and the HOME.
DOI: 10.1093/jpepsy/jsaa016
read more
+myBinderRelated Content
-
Parents Handbook for Sickle Cell DiseaseThis is a parents handbook for sickle ce...
-
Depression and quality of life in children with sickle cell disease: the effect of social supportBACKGROUND: The majority of available s...
-
Stress and Mental Health in SCD Interview Clipshttps://www.youtube.com/watch?v=LCcSTC-X...
-
Mental Health Resources for Black, Indigenous and People of Color (BIPOC)In addition to COVID-19, recent events h...
-
4th Annual Virtual Caregivers Summit – Sickle Cell Community Consortium4th Annual Virtual Sickle Cell Caregiver...
-
My medical school lesson was tinged with racism. Did that affect how I treated a sickle cell patient years later?The young woman was curled up in a ball....
-
Sickle cell adult and pediatric provider interview – Dr Nirmish Shahhttps://www.youtube.com/watch?v=6fFmmPrd...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.