Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Stress and the Home Environment in Caregivers of Children With Sickle Cell
source: Journal of Pediatric Psychology
year: 2020
authors: Taniya E Varughese, Catherine R Hoyt, Allison J L’Hotta, Princess A Ikemenogo, Seth G Howdeshell, Ashley J Housten, Regina A Abel, Allison A King
summary/abstract:Objective:
Caregivers of young children with chronic illnesses are at high risk for elevated levels of stress and mental health symptoms. This study examined stress and mental health symptoms as well as the socioeconomic status (SES) and home environments of a cohort of caregivers of infants and toddlers with sickle cell disease (SCD).
Methods:
Forty-two caregivers of infants and toddlers (aged 1–34 months) with SCD completed the Brief Symptom Inventory (BSI) and Parent Stress Index (PSI). The Home Observation for Measurement of the Environment (HOME) was used to assess family living environments.
Results:
Compared to test norms, caregivers reported high levels of situational/demographic life stress [mean difference (MD) 5.7, p = .003] and child distractibility/hyperactivity (MD 3.62, p = .001) on the PSI. However, no significant differences in psychological symptoms of distress were noted on the BSI. Caregivers scored significantly lower than norms on PSI subdomains of acceptability (MD −1.88, p = .03), competence (MD −3.11, p = .002), depression (MD −3.94, p < .001), and the overall parent domain (MD −12.55, p = .005). Significant correlations were found between PSI scores and the HOME and between SES and the HOME.
DOI: 10.1093/jpepsy/jsaa016
read more
Related Content
-
A Britain’s Got Talent contestant revealed how she turned to singing following the death of her sonA Britain's Got Talent contestant whose ...
-
Caregiver Burnout: ResourcesIf you are already suffering from stress...
-
Sickle Cell Disease & Hospitalizationhttps://www.youtube.com/watch?v=G_P4Uc9w...
-
Stigmatization of Sickle Cell Disease – Selina Olwenda-Chairperson Children Sickle Cell Foundationhttps://www.youtube.com/watch?time_conti...
-
Health Literacy and Disease-Specific Knowledge of Caregivers for Children With Sickle Cell DiseaseThis study was conducted to measure the ...
-
The Unveiling of Sickle Cell Anemia – A Life’s StoryThe doctors and nurses that I trusted so...
-
McCourty twins praise aunt who lost battle with sickle cell disease for ‘defying the odds’Twin brothers Jason and Devin McCourty s...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.