DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
Trusted Resources: News & Events
Latest announcements and gatherings
Sickle Cell Disease Association of America, Inc. Awarded $11.6 Million Continuation Grant from the Health Resources & Services Administration
The Health Resources and Services Administration (HRSA), part of the U.S. Department of Health and Human Services, has awarded the Sickle Cell Disease Association of America (SCDAA) a $2.9 million annual grant for the next four years to establish a national infrastructure to ensure sickle cell disease (SCD) patients receive appropriate follow–up care services including counseling, education, and home care.
The grant was given through the HRSA’s Sickle Cell Disease Newborn Screening Follow-up Program.
As the lead organization behind HRSA’s Sickle Cell Disease Newborn Screening Program, SCDAA in the past two years has provided administrative and infrastructure support to 25 member and non-member CBOs in 19 U.S. states, enhancing their capacity. It launched a National SCD Community Health Workers Training Program and trained more than 85 CHWs. It also developed a shared management system to collect and analyze patient data for HRSA and to report data outcome measures.
videos & visualsPreventing Strokes in Children with Sickle Cell Diseasehttps://www.youtube.com/watch?v=k6h7cb7S...
news & eventsSickle Cell Disease Association of America, Inc. Names New CEO & PresidentThe Sickle Cell Disease Association of A...
people & placesLaTonya Kittles HendricksLaTonya Kittles Hendricks, a University ...
news & eventsLiving Rare, Living Stronger – NORD Patient and Family ForumRare family, we are back in person! The ...
videos & visualsA Patient’s Journey With Sickle Cell Diseasehttps://www.youtube.com/watch?v=h8ZetdyY...
people & placesThe Valerie FundThe Valerie Fund has pediatric sickle ce...
education & researchCare Team MembersYour Sickle Cell Care Team Managing you...
send a message
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.