Sickle Cell Disease Association of America, Inc. Awarded $11.6 Million Continuation Grant from the Health Resources & Services Administration | oneSCDvoice
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Sickle Cell Disease Association of America, Inc. Awarded $11.6 Million Continuation Grant from the Health Resources & Services Administration


The Sickle Cell Disease Association of America, Inc. (SCDAA) has been awarded $2.9 million annually for the next four years from the Health Resources & Services Administration (HRSA) for the Sickle Cell Disease Newborn Screening Follow-up Program. With these funds, SCDAA will continue its efforts to establish the national infrastructure to ensure that individuals diagnosed with sickle cell disease (SCD) receive appropriate follow-up services including counseling, education materials and access to a medical home.

As a current grantee and the lead organization for HRSA’s Sickle Cell Disease Newborn Screening Program, SCDAA has served as the National Backbone Organization for HRSA, working with community-based organizations (CBOs) across the country to implement a strengthened approach to access quality care, quality care improvement and strategic activities within the sickle cell community.

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