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SCDAA Releases Comments on the CDC’s Opioid Guidelines
The Sickle Cell Disease Association of America, Inc., (SCDAA), is pleased to learn that the Centers for Disease Control and Prevention (CDC) is updating the 2016 opioid guidelines. However, the guidelines do not go far enough in providing guidance to providers on how to manage sickle cell disease (SCD) pain. Decades of misinformation, poor guidance, and systemic racism created barriers to receiving adequate care for pain.
SCD is an inherited red blood cell disorder affecting about 100,000 Americans, disproportionately impacting Black and Brown populations. In people with sickle cell disease, red blood cells become crescent-shaped, sticky, and hard. This condition increases the chances of blood clotting, causing pain crises, strokes, and organ damage. People with sickle cell disease also frequently experience a shortage of red blood cells, as these cells die much faster than sickle cell blood cells. Pain can occur throughout the body and can be excruciating, affecting a person’s mental and physical well-being.
people & placesChildren’s Healthcare of Atlanta Sickle Cell Disease ProgramChildren's Healthcare of Atlanta's Sickl...
education & researchTreosulfan-based conditioning regimen for allogeneic haematopoietic stem cell transplantation in children with sickl...Although allogeneic haematopoietic stem ...
education & researchAccess to Care for Individuals With Sickle Cell Anemia – SCDAASickle cell disease (SCD) is a genetic b...
videos & visualsInvesting in a Cure for Sickle Cell Disease: Lakshmanan Krishnamurti, MDhttps://www.youtube.com/watch?v=Fr5KvM4U...
news & eventsGBT launches ACCEL grants program to improve access to care for people with Sickle cell diseaseGlobal Blood Therapeutics, Inc. (GBT) to...
news & eventsSickle cell trait may not increase the risk of deathPeople who carry a gene for sickle cell ...
videos & visualsDon’t Let Sickle Cell Disease Limit Youhttps://www.onescdvoice.com/wp-content/u...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.