DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
Trusted Resources: News & Events
Latest announcements and gatherings
SCDAA Releases Comments on the CDC’s Opioid Guidelines
The Sickle Cell Disease Association of America, Inc., (SCDAA), is pleased to learn that the Centers for Disease Control and Prevention (CDC) is updating the 2016 opioid guidelines. However, the guidelines do not go far enough in providing guidance to providers on how to manage sickle cell disease (SCD) pain. Decades of misinformation, poor guidance, and systemic racism created barriers to receiving adequate care for pain.
SCD is an inherited red blood cell disorder affecting about 100,000 Americans, disproportionately impacting Black and Brown populations. In people with sickle cell disease, red blood cells become crescent-shaped, sticky, and hard. This condition increases the chances of blood clotting, causing pain crises, strokes, and organ damage. People with sickle cell disease also frequently experience a shortage of red blood cells, as these cells die much faster than sickle cell blood cells. Pain can occur throughout the body and can be excruciating, affecting a person’s mental and physical well-being.
Related Content
-
education & researchThe effects of pain-related anxiety on hypnosis treatment responses in adults with and without sickle cell diseasePain is the most common symptom in sickl...
-
education & researchHealth disparity in hematopoietic cell transplantation for sickle cell disease: Analyzing the association of insuran...The impact of racial and socioeconomic s...
-
news & eventsStudy challenges view that sickle cell trait increases mortality riskSurprising findings from a study of heal...
-
people & placesThe Regional Comprehensive Sickle Cell Center at Robert Wood Johnson Medical SchoolThe Division of Hematology provides spec...
-
news & eventsWebinar Series: Sickle Cell Science: Path to Progress – Bone Marrow Transplants, Other Therapies, and Sickle C...To commemorate Sickle Cell Awareness Mon...
-
people & placesSickle Cell and Young Stroke SurvivorsSickle Cell & Young Stroke Survivors...
-
people & placesMary Hulihan, DrPHDr. Mary Hulihan is the Health Scientist...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.