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The Sickle Cell Disease Association of America, Inc., (SCDAA), is pleased to learn that the Centers for Disease Control and Prevention (CDC) is updating the 2016 opioid guidelines. However, the guidelines do not go far enough in providing guidance to providers on how to manage sickle cell disease (SCD) pain. Decades of misinformation, poor guidance, and systemic racism created barriers to receiving adequate care for pain.
SCD is an inherited red blood cell disorder affecting about 100,000 Americans, disproportionately impacting Black and Brown populations. In people with sickle cell disease, red blood cells become crescent-shaped, sticky, and hard. This condition increases the chances of blood clotting, causing pain crises, strokes, and organ damage. People with sickle cell disease also frequently experience a shortage of red blood cells, as these cells die much faster than sickle cell blood cells. Pain can occur throughout the body and can be excruciating, affecting a person’s mental and physical well-being.
news & eventsKids With Sickle Cell Anemia are More Sedentary Than Healthy Peers, Study SuggestsChildren and adolescents with sickle cel...
videos & visualsHydroxyurea for Children – A HRSA EMBRACE Projecthttps://www.youtube.com/watch?v=LprBMpPb...
Community CenterBrandi Abernethy: Nursing Student, Patient, Single MomWhen she was growing up in St. Petersbur...
news & eventsNovel Sickle Cell Drug Causes Radical Results in End of Life PatientsThis week the FDA approved a novel treat...
education & researchFever management practices among sickle cell disease programs in low and middle-income countriesUnder-5 mortality for children with sick...
education & research‘Talk to Me. There’s Two of Us’: Fathers and Sickle Cell ScreeningStudying kinship has involved doing fami...
news & eventsCelebratory Scholarship Virtual Gala – Michelle’s House (SCDAA SC)Living with Sickle Cell Disease (SCD) du...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.