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Latest announcements and gatherings
Chief Patient Officer Summit
July 18-20 | Boston, Massachusetts
This conference focuses on building end-to-end support for patients with rare diseases. SCDAA President and CEO Regina Hartfield will participate on a panel about increasing diversity, equity and inclusion in clinical trials. Patients, caregivers and patient advocates are welcome. Register by May 26 to receive a discount.
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P.O.W.E.R. Community Based Organization TrainingCost: Free Starting Feb 6, 2020 12 PM ...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.