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Re-Authorization of the Sickle Cell Treatment Act passes Through the House of Representatives
On Monday, February 26, 2018, the U.S. House of Representatives considered and passed H.R. 2410, the Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act, which was introduced on May 11, 2017, by Representative Danny Davis (D-IL).
H.R. 2410 would authorize the Secretary of Health and Human Services to conduct surveillance and collect data on the prevalence of sickle cell disease (SCD). In addition, the bill would authorize the Secretary to develop public health initiatives that support community-based organizations in education activities and to support regional and state health departments in testing to identify SCD.
“This is a major victory for the sickle cell community,” said Sonja L. Banks, Sickle Cell Disease Association of America, Inc. (SCDAA) President. “It has been a long journey to get to this momentous occasion. SCDAA has worked tirelessly on the Treatment Act. We are so grateful for the ongoing support from Congressman Danny Davis and Congressman Michael Burgess (R-TX) for co-sponsoring this important legislation in the U.S. House of Representatives. We also want to thank the Congressional Sickle Cell Caucus, including G.K. Butterfield (D-NC) for standing alongside the sickle cell community.”
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.