DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
Trusted Resources: News & Events
Latest announcements and gatherings
On Monday, February 26, 2018, the U.S. House of Representatives considered and passed H.R. 2410, the Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act, which was introduced on May 11, 2017, by Representative Danny Davis (D-IL).
H.R. 2410 would authorize the Secretary of Health and Human Services to conduct surveillance and collect data on the prevalence of sickle cell disease (SCD). In addition, the bill would authorize the Secretary to develop public health initiatives that support community-based organizations in education activities and to support regional and state health departments in testing to identify SCD.
“This is a major victory for the sickle cell community,” said Sonja L. Banks, Sickle Cell Disease Association of America, Inc. (SCDAA) President. “It has been a long journey to get to this momentous occasion. SCDAA has worked tirelessly on the Treatment Act. We are so grateful for the ongoing support from Congressman Danny Davis and Congressman Michael Burgess (R-TX) for co-sponsoring this important legislation in the U.S. House of Representatives. We also want to thank the Congressional Sickle Cell Caucus, including G.K. Butterfield (D-NC) for standing alongside the sickle cell community.”
news & eventsNational Sickle Cell Advocacy Day 2020 — Sickle Cell Disease Association of America – CANCELEDPlease join the Sickle Cell Disease Asso...
Community CenterSickle Cell Warriors, Inc.Sickle Cell Warriors is a group of peopl...
people & placesSickle Cell Foundation of MinnesotaSickle Cell Foundation of Minnesota (SCF...
people & placesShamonica WigginsShamonica Wiggins is a 30-year-old sickl...
news & eventsSickle Cell Disease Stakeholder Engagement Workgroup—Strategies to Improve Sickle Cell Disease Primary CareThe Department of Health and Human Servi...
news & events2022 Annual Advocacy Day Event – SCDAASickle Cell Disease Association of Ameri...
people & placesIsaac OkelloIsaac Okello is a Sickle Cell Advocate f...
send a message
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.