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Latest announcements and gatherings
The EveryLife Foundation for Rare Diseases and Global Genes have made the decision to postpone our RARE on the Road events in Raleigh, NC (originally planned for March 28th). We have made this decision out of an abundance of caution regarding COVID-19, and to prioritize the health and safety of our event attendees.
It is our hope to reschedule the event for the summer of 2020.
Please stay tuned for further updates.
news & eventsCharlotte 13-Year-Old With Sickle Cell Plays Lead Role in Broadway’s ‘Lion King’"The Lion King" opens Wednesday night at...
news & eventsWebinar Series: Sickle Cell Science: Path to Progress – Serving the Sickle Cell Disease Community Here and Abr...To commemorate Sickle Cell Awareness Mon...
people & placesNancy M. ReneNancy is the grandmother of a child with...
people & placesFlorence Neal Cooper SmithFlorence Neal Cooper Smith has been figh...
news & eventsDr. Doris Wethers, 91, on Front Lines against Sickle Cell, DiesDr. Doris L. Wethers, who broke racial b...
videos & visualsSickle Cell Disease Coalition (SCDC)https://www.youtube.com/watch?v=oQP-Uq0B...
Community CenterSickle International Family CoalitionThe mission of the Sickle International ...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.