• Join Today!

Become a member and connect with:

  • An Active Online Community
  • Articles and Advice on SCD
  • Help Understanding Clinical Trials

2020 RARE on the Road – Raleigh

The EveryLife Foundation for Rare Diseases and Global Genes have made the decision to postpone our RARE on the Road events in Raleigh, NC (originally planned for March 28th). We have made this decision out of an abundance of caution regarding COVID-19, and to prioritize the health and safety of our event attendees.

It is our hope to reschedule the event for the summer of 2020.


Please stay tuned for further updates.