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Trusted Resources: News & Events
Latest announcements and gatherings
Rare Disease Day at NIH 2023
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news & eventsRare Disease Day at NIH 2023Rare Disease Day® takes place worldwide...
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news & eventsResearchers raise funds for phase 1 trial to test medical cannabis in sickle cell diseaseThe Sickle Cell Foundation of Georgia ...
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education & researchUnderstanding patterns and correlates of daily pain using the Sickle cell disease Mobile Application to Record Sympt...Patients with sickle cell disease (SCD) ...
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education & researchChildren and adolescents with sickle cell disease have worse cold and mechanical hypersensitivity during acute painf...Sickle cell disease (SCD) pain associate...
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news & eventsBoston public schools agree to recognize sickle cell disease as disabilityThe Boston school system has agreed to r...
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news & eventsIASCNAPA Sickle Cell Disease Conference: Treating the Whole PersonDate: April 14-15, 2021 Place: Online/V...
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videos & visualsMalik was Cured From Sickle Cell Disease (Teaser)https://www.youtube.com/watch?v=RddQ_qvh...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.