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Regina Hartfield is set to become the president and CEO of the Sickle Cell Disease Association of America, Inc. (SCDAA) on January 14, 2022.
In a Q&A-style interview with Sickle Cell Disease News, Hartfield, 62, explained where she wanted to take the organization and its various member groups. She also highlighted the importance of listening to the community and how to better engage patients in clinical trials, which historically have low minority enrollment.
Sickle Cell Disease News (SCDN): It seems like you’ve done a lot of community outreach in different organizations that you’ve been a part of. Are you planning on expanding the organization’s work in that area? And if you are, how are you planning on going about that?
Regina Hartfield (RH): The work that we’d like to do is to currently build on what we have right now. We have 53 member organizations that are part of the SCDAA partnership on a national basis. And so our footprint’s pretty broad, and one of the most important things that I definitely want us to do is to continue to build on that.
The other thing that I think will be exciting is to develop some different types of programming to augment the existing programs that we have in place for fundraising and advocacy. So, we’ll be working on developing those. Stay tuned.
SCDN: What are you hearing from those 53 member organizations? What are they saying are the biggest issues for them and how are you planning to address those?
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.