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Trusted Resources: News & Events
Latest announcements and gatherings
Pfizer rare disease introduces Council for Change to further help SCD patients
Following a report earlier this year that drew attention to the challenges of living with sickle cell disease and the urgent need for change in patient care – particularly in hospital emergency departments – Pfizer Rare Disease brought together the Sickle Cell Disease Council for Change (CFC).
The CFC consists of more than 20 national Sickle Cell Disease advocates, patients, and experts who tackle the pressing issues faced by those living with the disease. The CFC is focused on improving quality of patient care along with enhancing education and advocacy for the Sickle Cell Disease community.
Sickle Cell Disease is a lifelong debilitating blood disorder that causes reduced blood and oxygen flow in the body, often resulting in organ damage and severe pain.
education & researchImpact of emergency department care on outcomes of acute pain events in children with sickle cell diseaseThe impact of emergency department (ED) ...
education & researchTeens with Sickle Cell Disease Moving from Pediatric Care to Adult CareMoving from pediatric (children’s) car...
people & placesChristiana Care Sickle Cell ProgramChristiana Care is one of the country’...
news & eventsUniversity of Illinois at Chicago awarded $4.6 million NIH grant for chronic pain researchThe University of Illinois at Chicago ha...
videos & visualsInvesting in a Cure for Sickle Cell Disease: Lakshmanan Krishnamurti, MDhttps://www.youtube.com/watch?v=Fr5KvM4U...
news & eventsDDCF Awards $6 Million for Sickle Cell Disease ResearchThe Doris Duke Charitable Foundation has...
people & placesCarla JonesAnyone affected by sickle cell disease k...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.