DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
compose your message
email sent successfully
Trusted Resources: News & Events
Latest announcements and gatherings
Mental Health, Grief, and Sickle Cell Disease – Webinar
The Sickle Cell Mental Health Initiative of the Sickle Cell Community Consortium is committed to working with the patients, caregivers, and community-based organizations (CBOs) of the sickle cell community to provide mental health support amid COVID-19.
Click the link to join this Webinar by the Sickle Cell Mental Health Initiative.
Tuesday, May 19, 2020 | 7 PM EST, Webinar with Q&A
Wednesday, May 20, 2020 | 7 PM EST, Community Chat
This event has ended.
education & researchCOVID-19 and Sickle Cell Disease-Related Deaths Reported in the United StatesSickle cell disease (SCD) is associated ...
news & eventsCOVID-19 and Sickle Cell Disease and Access to Care WebinarThe 14th Annual Sickle Cell Disease Rese...
news & eventsSickle Cell Disease & COVID-19 – Cayenne Wellness Center and Children’s FoundationWednesday, May 27, 2020 from 4:00pm - 6:...
education & researchSecure-SCD Registry, Surveillance Epidemiology of Coronavirus (COVID-19) Under Research ExclusionThis registry is designed to capture ped...
news & eventsCOVID-19 Health Alert for People With Sickle Cell Disease and Their Caregivers (Adapted for Sub-Saharan Africa)April 1, 2020 - COVID-19, the coronaviru...
news & eventsRDLA April 2020 Legislative Webinar – Rare Disease Legislative AdvocatesRare Disease Legislative Advocates Powe...
news & eventsCOVID-19 Vaccine Communication Toolkit for Community-Based OrganizationsThe toolkit is designed to help CBOs edu...
send a message
Don’t forget to join the oneSCDvoice community!
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.