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The phrase “know your status” is synonymous with one potentially life-threatening disease, but singer Jordin Sparks wants you to be educated about another that also disproportionately affects African-Americans —and she’s working with “Generation S” to lead the conversation.
“Generation S is a group of those who have sickle cell disease sharing their stories and bringing more awareness to what the disease is,” Sparks said at the 46th Annual National Sickle Cell Disease Association of America in Baltimore.
“Obviously you can’t tell by looking at someone if they have it. With this it gives them an opportunity to show their face and say hey look, “I have this, this is my experience and everybody’s experience is different.”
people & placesSickle Cell Advocacy and Management InitiativeSickle Cell Advocacy and Management Init...
news & eventsDr. Doris Wethers, 91, on Front Lines against Sickle Cell, DiesDr. Doris L. Wethers, who broke racial b...
people & placesGlobal Genes / Rare Foundation AllianceGlobal Genes® is a 501(c)(3) non-profit...
people & placesHertz NazaireHertz Nazaire Hertz was born in Port-Au-...
news & eventsWebinar Series: Sickle Cell Science: Path to Progress – Bone Marrow Transplants, Other Therapies, and Sickle C...To commemorate Sickle Cell Awareness Mon...
news & eventsGreenville program tries team approach to improve lifespan of sickle cell disease patientsDr. Alan Anderson who was involved with ...
videos & visualsSickle Cell – Adrienne Shapirohttps://www.youtube.com/watch?v=LdpQOnlU...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.