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There’s new hope for patients who have blood diseases. Johns Hopkins Kimmel Cancer Center researchers say a new protocol offers the possibility of a cure. One patient who tried the treatment says it didn’t just change her life, it saved it.
For most of her life, Simone Day had a very different experience at the hospital than the one she’s having now. For Day, sickle cell meant acute pain crises. She’d be in the hospital for weeks. “I was essentially OK with dying at that point,” Day said. It’s different now, thanks to a bone marrow transplant in 2017.
The new protocol doesn’t only mean using what they call “half matched” donors, like Day’s mother, but also lowering the dosages of chemotherapy to make it safer on the patient.
education & researchCDC grand rounds: Improving the lives of persons with sickle cell diseaseApproximately 100,000 Americans have sic...
education & researchBone Marrow Transplants for Sickle Cell DiseaseA bone marrow transplant is the only way...
videos & visualsWorld Sickle Cell Day: Sisters Living With Sickle Cell, Hoping for a Curehttps://www.youtube.com/watch?v=y3Bg0RJv...
videos & visualsA Child Prodigy, a Painful Disease, and a Life-Changing Treatmenthttps://www.youtube.com/watch?v=SpzjD1ct...
news & eventsGeorgia Universities Join NIH-funded National Study of Bone Marrow Transplant for SCDThe Medical College of Georgia (MCG) and...
Community CenterKyriako Damavoletes Talks About the Stigma of Sickle Cell DiseaseKyriako Damavoletes has HbS beta thalass...
news & eventsArtist Panteha Abareshi Opens Up About Sickle Cell Disease and Expressing Her Pain Through Art in “The Girl Who Lo...When you suffer from a chronic condition...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.