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My parents knew they were carriers of the sickle cell trait before I was born, so they made an effort to find out if I had the disease during the prenatal stages of my mother’s pregnancy. Once they found out I had it, plans and preparations were made to ensure they knew how to be effective caregivers from the moment I was born.
My parents certainly tried their best to make sure they kept me as healthy as possible. There are quite a few things that I remember them encouraging me to do from a very young age.
The anthem of my childhood: “Tito, drink water!” Even though I didn’t fully understand what the importance of drinking water was, I just knew I had to do it and I never really questioned it. Drinking enough water is important for all people with sickle cell because it promotes healthy blood circulation and reduces the chance of a sickle cell crisis.
people & placesUriel E. Owens Sickle Cell Disease Association of the MidwestUriel E. Owens Sickle Cell Disease Assoc...
people & placesBlessed Miracles FoundationBlessed Miracles Foundation, Inc. is a n...
people & placesNene Kalu, MSWNene Kalu is a social worker at Center f...
education & researchPerceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of CareImportance: Sickle cell disease (SCD) i...
Community CenterSickle Cell Disease Association of North TexasSCDA Tarrant is committed to providing m...
news & eventsSickle Cell: Call The Midwife Shines Spotlight on DiseaseViewers and people with sickle cell dise...
videos & visualsSickle Cell Stories: Office of Minority Health, U.S. Department of Health and Human Serviceshttps://www.youtube.com/watch?v=HFojyaji...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.