• Join Today!

Become a member and connect with:

  • An Active Online Community
  • Articles and Advice on SCD
  • Help Understanding Clinical Trials

Healthcare advocates aim to better inform community on sickle cell realities

One in 2,400 are born with sickle cell disease (SCD) in the U.S. As one of the most common inherited blood disorders, it is widely misunderstood.

Last month, the Minnesota Sickle Cell Coalition — comprised of patients, doctors, healthcare providers, and advocates — co-sponsored a Sickle Cell Disease Stakeholder Forum at Sanctuary Covenant Church in North Minneapolis. Approximately 60 healthcare professionals and others attended the Dec. 10 event to not only help improve care for those afflicted by the disease but also to increase awareness of the disease, screening and healthcare disparities.

SCD is a group of inherited red blood cell disorders including Sickle Cell Anemia (Hgb SS Disease), Hemoglobin SC Disease, and Hemoglobin Sickle Beta Thalassemia. People with sickle cell disease produce abnormal hemoglobin (Hgb S), which can interrupt blood flow and prevent oxygen from getting to important parts of the body. This can cause many potential health complications, including extreme pain, risk of stroke, and pulmonary hypertension.



expertly curated content related to this topic

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.