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The Centers for Disease Control and Prevention (CDC) will share an award total of nearly $1.2 million with institutions in seven U.S. states, allowing them to take part in a data gathering program on sickle cell disease and how it affects daily life.
The funding brings to nine the number of states in the CDC’s Sickle Cell Data Collection program. The new states join Georgia and California as CDC partners in efforts to gain population-based, comprehensive health information. The program is aimed at better understanding the needs of sickle cell disease (SCD) patients, and in developing therapies more suited to their needs and providing greater support.
“HHS is committed to normalizing the lives of people living with sickle cell within 10 years,” Brett Giroir, MD, assistant secretary for health at the Department of Health and Human Services, which includes the CDC, said in a news release.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.