Beverly Ndukwu: A patient fighting back with SCD | oneSCDvoice
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Beverly Ndukwu: A patient fighting back with SCD


Beverly Ndukwu was diagnosed with sickle cell disease when she was two years old and living with her family in Brandon, Man. For years, she longed to find someone else who shared in her experience with the disease. Then when Beverly was 14, her little sister Andrea was born, and she had sickle cell too. But one morning in November 2007, she woke up with flu-like symptoms. By the next evening she was gone.

Watching Andrea suffer with sickle cell disease changed things for Beverly. Later she was introduced to the Sickle Cell Disease Association of Canada. That was where Beverly found the community she’d always longed to find. Beverly then co-founded the Sickle Cell Association of B.C. and started advocating for education around the disease. Beverly started an organization called the Sickle Circle of Manitoba to raise awareness and build community for Manitobans living with the disease. Beverly is now actively involved in working for people with sickle cell disease.

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