Google
Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Transition Needs of Adolescents With Sickle Cell Disease
source: American Journal of Occupational Therapy
year: 2015
authors: Abel RA, Cho E, Chadwick-Mansker KR, D'Souza N, Housten AJ, King AA
summary/abstract:OBJECTIVE:
This article describes how adolescents with sickle cell disease (SCD) perceive their ability to perform everyday tasks required for transition to adult health care and independent living.
METHOD:
The Adolescent Autonomy Checklist (AAC) was adapted to include skills associated with managing SCD (AAC-SCD) and was administered to adolescents during clinic visits. Participants indicated “can do already” or “needs practice” for 100 activities in 12 categories.
RESULTS:
Of 122 patients, the percentage of adolescents who needed practice was greatest in living arrangements (38.7%), money management (35.8%), vocational skills (29.6%), and health care skills (25.5%). We found a significant effect of age and of cerebrovascular injury on the percentage of those who reported “needs practice” in multiple categories. We found no effect of gender and limited effect of hemoglobin phenotype on any skill category.
CONCLUSION:
Findings support the need for educational intervention to improve transition skills in adolescents with SCD.
DOI: 10.5014/ajot.2015.013730
read more full text
+myBinderRelated Content
-
Here to Stay — Living With Sickle Cell DiseaseMy name is Noah Alexander Williams and I...
-
Multiple Levels of Suffering: Discrimination in Health-Care Settings is Associated With Enhanced Laboratory Pain Sen...OBJECTIVE: People living with sickle ce...
-
CIRM and NHLBI Collaborating to Fund Cell and Gene Therapies for Sickle Cell DiseaseThe California Institute for Regenerativ...
-
L-glutamine Oral Powder Significantly Reduces Acute Complications of Sickle Cell DiseaseApproved by the US Food and Drug...
-
Methadone provides pain relief for kids with sickle cellMany children with sickle cell disease e...
-
Associations between environmental factors and hospital admissions for sickle cell diseaseSickle cell disease is an increasing glo...
-
The Empowered Caregivers Forum: A Support Resource for Parents / Caregivers of Warriors With Sickle Cell / Thalassem...Join Carla Lewis, CEO of Kids Conquering...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.