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reference materials

Transforming Clinical Outcomes for Patients With Sickle Cell Disease: The Power of Collaborative Patient-Provider Partnerships

key information

source: PRIME Education

year: 2020


Patients who understand their own health conditions and partner with their clinical teams to adopt personalized treatment plans are happier and achieve better outcomes.

This practical toolkit provides clinicians with materials and resources to engage with patients and educate them about sickle cell disease. Use the toolkit with patients individually or in group education settings to help build a strong foundation for shared decision-making regarding treatment goals and preferences, transitions of care, and individualized treatment plans.

Included in this toolkit:

• Patient-friendly slide deck with helpful speaker notes on living with sickle cell disease, the newest options for treatment, and factors influencing therapy selection
• Tips for engaging patients in collaborative learning so they become active participants in their own care
• Resources that support shared decision-making, self-management, and treatment adherence in your practice

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