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Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Expanded newborn screening using new technologies
source: Screening, Technology And Research in Genetics Project (Hawai‘i Department of Health)
year: 2020
summary/abstract:This fact sheet has general information about sickle cell disease (SCD). Every child is different and some of this information may not apply to your child specifically. Certain treatments may be recommended for some children but not others. If you have specific questions about SCD and available treatments, you should contact your doctor.
The majority of the management recommendations pertain to hemoglobin SS, which is the most common type of SCD. If your child has hemoglobin SC or hemoglobin beta-thalassemia, ask your doctor for more specific information about that condition.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.