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reference materials

Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action

key information

source: National Academies of Sciences, Engineering, and Medicine

year: 2020

summary/abstract:

The Department of Health and Human Services (HHS), Office of Minority Health requests that the National Academies of Sciences, Engineering, and Medicine convene an ad hoc committee to develop a strategic plan and blueprint for addressing sickle cell disease (SCD) in the United States. In conducting its work, the committee will examine:

  • The epidemiology, health outcomes, genetic implications, and societal factors associated with SCD and sickle cell trait (SCT), including serious complications of SCD such as stroke, kidney and heart problems, acute chest syndrome, and debilitating pain crises.
  • Current guidelines and best practices for the care of patients with SCD; to the extent possible, the economic burden associated with SCD.
  • Current federal, state, and local programs related to SCD and SCT, including screening, monitoring and surveillance, treatment and care programs, research, and others.
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